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Plans4Care Research Study

Are you a family caregiver for a person living with dementia? Would you like strategies for managing daily care challenges? Are you seeking trustworthy information about dementia? Feeling overwhelmed and having difficulty taking care of yourself?

The Plans4Care study may be right for you if you have access to a smart phone, tablet or computer, are the primary person caring for an individual with dementia, or are experiencing challenges in dementia care including attending to your own wellbeing.

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Developed by over 20 years of research from

About the Plans4Care Study

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Plans4Care is a research study funded by the National Institute on Aging (Grant# R44AG084365). The study's goal is to evaluate whether using the Plans4Care app enhances a caregiver’s wellbeing. The Plans4Care study is a collaboration between Plans4Care, Inc., Drexel University, and Thomas Jefferson University.

About the
Plans4Care App

Plans4Care has built a ecosystem of science backed tools and resources for dementia caregivers. Using the Plans4Care app, caregivers can receive “Action Plans” that contain easy-to-use non-drug strategies to address common dementia-related care challenges, trainings, and staff support.

Everyday Function Scale

Quick objective assessment that determines a person with dementia's ability to perform everyday activities and any safety considerations.

90+ Care Challenges

Select from over 90 common dementia care challenges and receive personalized action plans with simple to use non-drug strategies that can improve daily life.

Resource Library

Browse over 60 brief documents and short videos on a variety of dementia care topics and best dementia care practices.

Care Advisors

Speak to a trained care advisor who can assist with implementing recommended strategies or discuss other matters related to dementia care.

Why Participate?

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Caring for individuals with dementia can be incredibly challenging. Did you know that more than 70% of care is provided by family members or community caregivers who often lack formal training? That's why we are dedicated to creating the most comprehensive database of scientifically-backed training tools and support resources to empower caregivers.

Caring for someone with dementia?

Join the Plans4Care research study to gain access to tools, resources, and support while supporting clinical research

Join the Study

How the study works

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Intro Call

In a brief telephone call, Drexel University research staff will explain the study in more detail and see if it is right for you.

Interview

If this study is right for you and you would like to participate, a one-hour telephone interview will be scheduled to discuss your health and wellbeing.

App Access

Following your interview, you will be randomly assigned to one of two groups: 1) Immediate Access - You will receive instant access to the Plans4Care web app for up to 12 months, or; 2) Delayed Access - You will receive access to the web app 6 months after your interview, and will have 6 months of access.

Ongoing Support

Regardless of group assignment, all caregivers are interviewed at 3, 6, and 12 months about health, wellbeing, and satisfaction with the app. 

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Meet the Team

Plans4Care Inc. Team

Eric Jutkowitz, PhD
Chief Executive Officer

Is a co-founder and CEO of Plans4Care, Inc. and an Associate Professor in the University of Minnesota School of Public Health. He has over 100 peer-reviewed publications, and his work focuses on designing, evaluating, and implementing programs and policies to support people who need long-term care and their caregivers. In 2022, he co-founded Plans4Care with the goal of scaling access to evidence-based dementia care to reach beyond the walls of the university.

Sokha Koeuth, DHSc, MPH 
 Chief Operations Officer

She is the Chief Operating Officer of Plans4Care, Inc. where she leads the development of best practices in software solutions for dementia care interventions. She has a diverse background in marketing, public health, and a recently earned doctorate in health science. She brings over 15 years of experience commercializing online training programs that equip healthcare providers with evidence-based dementia care skills.

Laura N. Gitlin, PhD, FGSA, FAAN
Chief Scientific Officer

Laura N. Gitlin,  an intervention scientist, is Dean Emerita and Distinguished University Professor, College of Nursing and Health Professions at Drexel University. Gitlin is nationally and internationally recognized for her research on developing, evaluating, and implementing novel home- and community-based interventions that improve quality of life of older adults and their family caregivers, enhance daily function of older adults with functional challenges, and address mental health disparities. She is a well-funded researcher, having received continuous research and training grants from federal agencies and private foundations for over 35 years. 

Catherine Piersol, PhD, OTR/L, FAOTA, FNAP
Chief Clinical Officer

Cathy Piersol is a Professor and Chair in the Department of Occupational Therapy, College of Rehabilitation Sciences at Thomas Jefferson University in Philadelphia, Pennsylvania. Dr. Piersol has been an occupational therapist for 40 years. As a practitioner, educator, and researcher, she is dedicated to the implementation of person-environment approaches that promote activity engagement and quality of life for elders and caregivers. Her work centers on optimizing performance and participation in people living with dementia and building skills in those who provide care and support. In addition, Dr. Piersol’s work focuses on translating research to practice and ensuring fidelity of evidence-based interventions. 

Lori Eckert, MS, OTR/L
Clinical Specialist

Lori Eckert, MS, OTR/L is an occupational therapist with 18 years of experience specializing in dementia care, neurorehabilitation, and clinical education. She has experience leading clinical training initiatives and delivering home-based interventions for individuals living with dementia. Since 2023, she has contributed to Plans4Care's platform development, designing caregiver resources and cognitive evaluation tools. With extensive experience in clinical leadership, education, and research, Lori advances occupational therapy practice through evidence-based interventions and innovative care solutions. She is the clinical specialist of Plans4Care.

Drexel University Research Team

Taylor Sivori, OTD, OTR/L 
Research Project Manager

Taylor Sivori, OTD, OTR/L is a Research Project Manager II  under the College of Nursing and Health Professions at Drexel University with a clinical background as an Occupational Therapist. For the Plans4Care study, Dr. Sivori serves as a Care Advisor and is also involved in recruitment, interviewing, data analysis, and other administrative needs of the study. Dr. Sivori is also involved in the advancement and coordination of evidence-based programs including the Tailored Activity Program (TAP) and Care of Older People in their Environment (COPE) within her role at Drexel. Prior to joining the research team, she was a Clinical Research Coordinator at Thomas Jefferson University’s Department of Occupational Therapy in the Autism Center of Excellence and has overseen multiple projects from ideation and development through implementation and dissemination.

Melinda Webster, BS  
Research Project Manager

Melinda Webster is a Research Project Manager II for the AgeWell Collaboratory at Drexel University’s College of Nursing and Health Professions and serves as Project Manager and Care Advisor for the Plans4Care study. Prior to joining the AgeWell Collaboratory, she was a clinical research coordinator for the Department of Neurology in Drexel University’s College of Medicine. She brings a wealth of experience in working directly with people with dementia, their caregivers, and families in a clinical setting—particularly in managing industry-sponsored clinical trials and conducting neuropsychological batteries for studies—and in the management of clinical research. During this time, she gained firsthand insight into the daily struggles and questions people with dementia and their families experience in attempting to navigate education, resources, and healthcare while acclimating to their new “normal.” Within AgeWell, she was also previously lead Project Manager for the WeCareAdvisor study, testing nonpharmacological strategies delivered by a web-based tool for caregivers of people with dementia experiencing behavioral symptoms. On Plans4Care she hopes to continue this work while co-managing the incredible Plans4Care study team at Drexel University.

Rachel N. Barnett, MS
Project Manager II

Rachel Barnett serves as Project Manager II at Drexel University's College of Nursing and Health Professions. She has worked at Drexel for nine years, progressing through roles including Administrative Assistant, Program Coordinator, and Executive Assistant to the Dean before moving into project management in 2022.
In her current role, Rachel oversees various projects, drawing on her extensive institutional knowledge and experience across multiple departments, to assist with the advancement and implementation of evidence-based programs. Her career progression at Drexel has provided her with a comprehensive understanding of academic operations, research activities, and administrative processes.
Rachel holds a bachelor’s degree in Psychology from Chestnut Hill College and has recently completed her master's degree in Environmental Policy with a focus on environmental science at Drexel University. 

Interviewers

Magdalene Adotey, BS
Interviewer

Magdalene Adotey is an interviewer for the Plans4Care study within Drexel University’s College of Nursing and Health Professions. In this role, she conducts structured interviews with caregivers to document their experiences, challenges, and needs in dementia care. Prior to joining the Plans4Care team, she worked as a research assistant at The Ohio State University Wexner Medical Center in the Departments of Internal Medicine and Biomedical Informatics. During this time, she supported studies on body image and obesity among Black women as well as rare diseases in children, gaining valuable experience in participant recruitment, focus group moderation, data collection and analysis, and protocol implementation. These experiences strengthened her skills in engaging with diverse patient populations and conducting sensitive, participant-centered research. On Plans4Care, she hopes to continue amplifying caregiver voices and contribute to advancing evidence-based resources for caregivers navigating dementia care.

Kamryn Delaney, BS
Interviewer

Kamryn is currently a Clinical Research Coordinator at the University of Pennsylvania Health System. She graduated from Drexel University with a Bachelor of Science in Health Sciences, where she worked as a Research Assistant on the WeCareAdvisor Study. Passionate about advancing healthcare through innovation and patient-centered studies, Kamryn combines her background in research with her commitment to improving outcomes in the medical field.

Olivia Lotito, BS
Interviewer

Olivia Lotito brings over five years of research experience, including work at Oregon Health & Science University (OHSU) and previous projects with Drexel University. She is excited to rejoin Drexel’s research community and contribute her expertise once again. Alongside her research background, Olivia has extensive experience in customer service and sales, where she developed strong communication, problem-solving, and relationship-building skills that complement her analytical work. She combines technical expertise with a client-focused approach, ensuring accuracy, clarity, and impact in every project she supports.

Katherine Marx, PhD, MPH
Interviewer

Dr. Marx is a Research Associate Scientist, Principal Faculty, and the Director of Operations at the Johns Hopkins School of Nursing’s Center for Equity in Aging. She has been involved in research with older adults for almost 25 years. She has managed research studies from the pilot to RCT level. Her current research studies include examining innovative solutions for helping caregivers of persons with dementia in the community and in long-term care settings manage everyday care challenges, with a particular interest in the use of meaningful and tailored activities. Prior studies have focused on older men’s health and health promotion and aging in the continuing care setting. Her research interests include caregiving, health promotion, and senior housing.

Deborah Moore, BA
Interviewer

Deborah Moore is an Interviewer for the Plans4Care study testing an online digital application for caregivers to use to enhance dementia care. She has worked in research for many years. Her experiences include working as an Interviewer and Project Coordinator II for the WeCareAdvisor study to help primary caregivers manage behavioral symptoms of persons living with Dementia. She conducted a study and report on the effects of gentrification in certain neighborhoods of Portland called the 2015 Alberta Street Project in Portland, Oregon. She worked on a study called G.A.L.S (Girls Active Lifestyle Study) where she measured and compared physical activity of youth and people of color throughout the Portland Metropolitan area. She worked for the I-CONECT study where she conducted video conversations with senior participants living with Mild Cognitive Impairment (MCI) to determine whether increased social activity results in improved brain health. Deborah received her Bachelor of Arts degree in Rhetoric and Communications from the University of Oregon.

Krista Schmidt, MS, LPC-A, NCC
Interviewer

Krista Schmidt, MS, LPC-A, NCC (she/her) serves as a research interviewer for the Plans4Care study. She has a background in psychology and community and trauma counseling. Krista is currently a Health Science Specialist at the US Department of Veterans Affairs, working with veterans who experience chronic pain as well as those who have traumatic brain injuries (TBIs). Krista has been involved in research teams throughout her career, both interviewing and coordinating, for studies focusing on veteran depression post-TBI, in-home rehabilitation for chronic TBI symptoms, caregiver burden, and Cognitive Behavioral Therapy for Chronic Pain (CBT-CP). Krista also has a background in health systems quality improvement and patient safety, having served as a National Center for Patient Safety Advanced Fellow at the Philadelphia VA in 2021. 

Bre Taylor, MPH
Interviewer

LaBreshia (Bre) Taylor, MPH, earned her Master of Public Health degree from Arcadia University and currently serves as an Adjunct Instructor in the university's Department of Public Health, teaching courses in Health Equity and Practicum Planning. Bre is also a Project Manager for the Community-Led Research Project (CRP) Initiative at Drexel University’s Dornsife School of Public Health. Additionally, Bre is a member of Scholarship Committee for Sisters in Public Health (SiPH), a national organization dedicated to supporting women in the public health field. Bre’s experience in caregiving stems from personal experience on her grandfather’s care team after a stroke and additional experience as a patient/participant coordinator for labs and practical exams at Arcadia University’s Department of Physical Therapy. Bre holds a B.S. in Biopsychology from Oglethorpe University in Atlanta, GA, and has extensive experience in civic engagement. She has coordinated and supported service-learning programs for students in diverse locations, including New Orleans, Tallahassee, Charlotte, Bolivia, and Guatemala. Bre is a proud native of Memphis, TN, but is grateful to call Philadelphia home.

Thomas Jefferson University Research Team

Brooke Salzman, MD
Jefferson Health Clinician

Dr. Salzman is originally from the Philadelphia area and attended college at Cornell University in Ithaca, NY. She attended medical school at Jefferson, where she stayed for residency in Family Medicine and Geriatric Fellowship. She started as faculty here at Jefferson in 2005.

Susan Parks, MD
Jefferson Health Clinician

Dr. Parks’ academic interests include developing clinical and academic programs, academic leadership and improving care for older adults. She helped develop the outpatient practice, Jefferson Center for Healthy Aging, which opened in January 2016. Dr. Parks was recently elected to the Board of the American Geriatrics Society.
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Dr. Parks is the Director of the Division of Geriatric Medicine at Jefferson in the Department of Family and Community Medicine. She is originally from Haddonfield, NJ. She went to medical school in Newark, NJ at UMD New Jersey Medical School. She matched at Jefferson in Family Medicine in 1994 and has remained here since. She did a two-year fellowship in Geriatric Medicine. She is currently the Medical Director of the Jefferson Center for Healthy Aging and is serving as the director of the Division of Geriatric Medicine.

Why Participate?

Frequently asked questions about how the study works, who its for, and why you should participate in research studies

What is research?

Research is a way of answering important questions concerning the health and well-being of individuals and communities. Research is conducted by scientists alone or in partnership with communities and individuals. Research is funded by government agencies, private foundations or health care organizations. There are many different types of research involving individuals including surveys, clinical trials, or in-depth interviewing. Research can also occur over the telephone, through the internet or use of other technologies, in person, in the home, or healthcare settings.

Why participate in research?

People participate in research for a variety of reasons, here are some of the most common ones:

  • To play an active role in one’s own health and well-being
  • To participate in new services before they become available
  • To receive potentially beneficial information
  • To share personal experiences so that others may benefit
  • To have a sense of giving back, of helping others or contributing to a greater good
Who is conducting this study?

This study is funded by the National Institute on Aging to the Plans4Care, Inc company.  The Company is collaborating with Drexel University and Thomas Jefferson University to evaluate the benefits of a web app referred to as Plans4Care

What does the study involve?
  • All participants in this study will have an opportunity to use the Plans4Care web app. 
  • You would be initially interviewed by a trained member of the research team to determine if this study is right for you.
  • If this study is right for you and you wish to participate, then a followup interview will be scheduled.  This interview will take about one hour and you will be asked questions about your health and wellbeing and that of the person you care for.
  • After this interview, you will be assigned by chance (randomly, like a flip of a coin) to receive access to the Plans4Care web app platform immediately or 6 months later. 
  • You will then be interviewed again by telephone at three (3), six (6), and twelve (12) months after starting the study. Each interview will last up to 1 hour. 
  • Upon completion of each interview (initial, 3, 6 and 12 months), you  will receive an Amazon e-gift card for $20 (up to $80 total for study participation) in appreciation of your time.
  • Within a few days of completing the 12-month follow-up interview, a member of the research team will call to conduct a brief telephone interview (15 minutes) to ask about your satisfaction with the study and the web app. 
  • At the conclusion of study participation, caregivers will no longer have access to the web app. A book of helpful strategies, many of which are found on the Plans4Care web app will be provided.

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What are the benefits of participation?
  • All caregivers enrolled in this study will have access to the web-app and an opportunity to try it out.
  • Caregivers will receive dementia-related education that may be helpful.
  • With your help, we will evaluate whether the Plans4Care web-app is beneficial for caregivers and support their efforts. 
  • All caregivers enrolled in the study will receive a small honorarium for their time in providing feedback in interviews.
What should you know before you join a study?

Before you agree to participate in a study, you have the right to know the answer to these questions:

  • What is the purpose of this study?
  • What do I have to do in this study?
  • How long will I be in this study?
  • Can I still receive medical or other services while in this study?
  • Do I have access to the information I provide?
  • Will I be informed of any test results?
  • What are the potential risks (if any)?
  • What are the potential benefits of participating?
  • How is the information I provide protected?
  • Who do I contact about the study for more information?
  • Who is funding or sponsoring the study?
  • What do the researchers hope to learn from the study?
  • Who if anyone will have access to the information I provide as part of the study?
What is informed consent?
  • Informed consent is a process by which you are informed verbally and/or in writing by the research team about the purpose, procedures, risk and benefits of the study. You will be asked to review the informed consent and provide verbal or written consent.
  • Remember, that giving your informed consent is not a contract and your participation in a study is completely voluntary. You can decide to leave a study at any time. You can also decide not to answer a question that is asked of you in a study. Also, participating in a study does not prevent you from receiving services or participating in other activities.
  • The information you provide in a study is totally confidential and will not be shared with anyone who is not listed in the informed consent.  Your identity is protected through the use of identification numbers, password protected data files, and locked storage cabinets and offices.
What are the risks of participating in a study? How am I protected?

Studies vary in their level of personal risk from having no to minimal risk to having high risk. Before agreeing to participate in a study, the procedures, benefits and risks must be fully explained to you. If the study is right for you and you are willing to participate, you will be asked to read and sign an “Informed Consent” form that states the level of risk, types of risks, and how risks will be mitigated. For the Plans4Care study, there is no to minimal risk. The Plans4Care study is considered low risk.

What is an institutional review board?

All research studies must be approved and monitored by an Institutional Review Board (IRB), a legal entity of the institution conducting the study. The IRB ensures that you are protected from risks that may be too great, that your privacy is protected and that you are fully informed about the study and have chosen freely to participate. For more information about informed consent and your protection go to: http://clinicaltrials.gov or contact the Drexel University IRB at 267-359-2471 or HRPP@drexel.edu

What are the risks of participating in a study? How am I protected?

Studies vary in their level of personal risk from having no to minimal risk to having high risk. Before agreeing to participate in a study, the procedures, benefits and risks must be fully explained to you. If the study is right for you and you are willing to participate, you will be asked to read and sign an “Informed Consent” form that states the level of risk, types of risks, and how risks will be mitigated. For the Plans4Care study, there is no to minimal risk. The Plans4Care study is considered low risk.

Why participate in the Plans4Care research study?

Families are typically left on their own to manage daily care challenges without the disease knowledge, skills or access to evidence-based non-drug strategies. The online Plans4Care web-app provides family caregivers with educational materials and personalized Action Plans on-demand to address caregiver-identified dementia-related care challenges. Caregivers are encouraged to implement Action Plans and to evaluate their progress by tracking their stress and whether care challenges are resolved or better. Caregivers can also opt to speak to a Care Advisor who can assist with implementing recommended strategies or discuss other matters related to dementia care.

The Plans4Care web-app is an innovative approach to support caregivers which can be used at any time to address care challenges or review dementia-related information. 

Your participation in this study will help us learn about the effectiveness of the Plans4Care web-app and how to improve it.

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Caring for someone with dementia?

Join the Plans4Care research study to gain access to tools, resources, and support while supporting clinical research

Join the Study

FAQs + More on How it Works

Frequently asked questions about how the study works, who its for, and why you should participate in research studies

Do I need a smart phone to participate?

No, you do not need a smartphone to participate. Plans4Care can be used on any internet-capable device, including computer, laptop, tablet or smartphone.

Do I need a smart phone to participate?

No, you do not need a smartphone to participate. Plans4Care can be used on any internet-capable device, including computer, laptop, tablet or smartphone.

What if I am not good with technology?

If you can check your email, surf the web, or use mobile apps like Facebook, you can participate in this study.

Is Plans4Care available in other languages?

At this time, the Plans4Care web-app is only available in English and participants must be fluent in English to participate. However, in the future, we hope to offer the web-app in other languages.

I am very busy. Can participation work around my schedule?

Yes, the study team understands how time-intensive caregiving can be, and all interviews are scheduled for when it is convenient for you. The interviews are scheduled based on your availability and can be completed in different calls, if needed. There is no time requirement for using Plans4Care. You can use it as little or as often as you would like, at any time. It is up to you.

How will I know how to use the web-app?

The web-app is easy to navigate. We will walk you through it at the time you gain access to it. Also, there are helpful instructions throughout the web-app.

If you have any difficulties or questions about using the web-app during the study, the study team will be able to assist you.

How often should I use the tool?

There is no time requirement for using the Plans4Care web-app. You can use it as little or as often as you would like, and at any time.

Can I see my results while I’m in the study?

Unfortunately, we cannot share any information about the results of the study while you’re in the study. However, we plan to share our findings with all participants after the study is completed and the interviews are analyzed.

Will this study cost me anything?

No. Participation in this study is not associated with any costs and is completely voluntary.

Caring for someone with dementia?

Join the Plans4Care research study to gain access to tools, resources, and support while supporting clinical research

Join the Study
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